Seeking a support group while going through a trying time in
your life or learning how to deal with a disease that consumes your life will
help you to learn to cope, accept, and remain positive. Being supported by other people experiencing
the same situation as you can be a powerful feeling especially with the
emotional rollercoaster that this unpredictable chronic illness presents. When you go through ups, down, flares, and
remission lupus can feel overwhelming and you may experience a loss of control
over your life. Having people there to talk through these times will you and
people who relate to what you are experiencing can help you to keep a positive
outlook on your life.
Support groups are where people with a similar disease get
together at a regular time each week or month to talk. Support groups can take
place in homes, clinics, offices, coffee shops, hospitals, religious gatherings. These support groups may give you a sense of
connection. Meeting and talking with others that understand your feelings and
concerns will help you fight back loneliness and isolation. Many people gain
coping skills. They get ideas for dealing with lupus preparing for flares,
handling finances, and not just surviving, but even thriving with lupus.
Another positive outcome is the gaining of motivation and hope. Being inspired
to take a meaningful role in your own care and your future by sharing and
listening to others. These groups can also help you to stay informed on the
latest research, trials, and possibilities for new medications. One of the most
beneficial outcomes is that of friendship. When it happens it can provide great
relief for helping normalize feelings and concerns.
These links below will help you to discover some important
support groups in your area that are specific to your location and needs. Not
everyone with lupus is the same and not everyone deals with the disease the
same, but connecting with people who can relate to you might just be the
empowerment that you are desperately striving for.
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